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FSHD Society Radio

FSHD Society Radio

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This talk show features people, advocacy, research, and more from the FSH muscular dystrophy community. Sponsored by the nonprofit FSH Society.

On-Demand Episodes

FSHD Society Radio

Our special guest in February will be Dr. Tahseen Mosaffar. Tahseen Mozaffar, MD, is director of the MDA ALS Neuromuscular Center at the University of California Irvine Medical Center. As a nationally recognized expert in his field,... more
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FSHD Society Radio

This episode of the FSH Society Radio show we welcome Justin Skeesuck and Patrick Gray form the book and film "I'll Push You." Over the past 20+ years, a progressive neuromuscular disease has slowly taken away Justin's ability to use... more
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On this episode, the featured guests are you the listener! We'll be joined by FSHD ambassadors Carden Wyckoff and Lexi Pappas, who each have great stories to share. Host Tim Hollenback will take calls live on air from all of you who want to... more
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FSHD Society Radio

We are thrilled to welcome actor Max Adler, FSH Society honorary board member and advocate. The 31-year-old film and television actor first achieved national recognition for his role as Dave Karofsky on the hit television series Glee.... more
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FSHD Society Radio

Mark Stone began his tenure as CEO and President of the FSH Society in September. Stone is a leading executive in health care-related non-profit organizations, having served as an executive leader of research-focused patient... more
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This month's radio show guest is Steven Blier, a pianist and go-to coach for some of the world's most celebrated singers. Joining us also will be George Pollock, to tell us about his experiences riding in the cross-continental Race... more
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FSHD Society Radio

Charis L. Himeda, PhD, is Research Assistant Professor at the Center for Molecular Medicine at the University of Nevada, Reno School of Medicine. She has worked in the fields of myogenesis and muscle disease for many years,... more
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FSHD Society Radio

Our guest tonight is Carol S. Birnbaum, MD, a psychiatrist in private practice in Cambridge, Massachusetts. She is a tireless advocate for the Society as an adviser and liaison with patients and families. In 2011, Dr. Birnbaum lost her... more
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Chris is the voice of the NBA's Brooklyn Nets and as founder of the Chris Carrino Foundation, an outspoken advocate for FSH muscular dystrophy. We will hear his story—how he embarked on his career as a sports broadcaster, keys to... more
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Tonight we present the first live show of FSH Society Talk Radio. Host Tim Hollenback welcomes featured guest George Pollock. George is leader of Team FSHD Cycling, which will be competing in the grueling RAAM (Race Across... more
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